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UVA is about a million times better than JHU. The doctors not only stay in contact with us, they are in to see Charlie all the time.
Which is why we found out this morning that they are going to place the G-Tube. She was eating really well when she first got there and there was a possibility that they'd just give her to us. But she's only taken 25% of her food by mouth in the past twenty-four hours, which helped them make up their minds.
The surgery is tentatively scheduled for Tuesday.
I know this is a good thing...I know that we're not rushing into it and that we're not being pushed into it. That this really is what's best for Charlie and what will get her home.
I'm just not dealing well with the reality of the situation at all. All my fears about her being in surgery have returned (they never really left) along with the knowledge that we're going to let people hurt her. That's pretty much what surgery *is*, causing pain now to prevent it later. And we can't even explain it to her.
Which is why we found out this morning that they are going to place the G-Tube. She was eating really well when she first got there and there was a possibility that they'd just give her to us. But she's only taken 25% of her food by mouth in the past twenty-four hours, which helped them make up their minds.
The surgery is tentatively scheduled for Tuesday.
I know this is a good thing...I know that we're not rushing into it and that we're not being pushed into it. That this really is what's best for Charlie and what will get her home.
I'm just not dealing well with the reality of the situation at all. All my fears about her being in surgery have returned (they never really left) along with the knowledge that we're going to let people hurt her. That's pretty much what surgery *is*, causing pain now to prevent it later. And we can't even explain it to her.