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Well, that was cool. I handed Sam a copy of Harry Potter & The Sorcerer's Stone. She yelped with glee and then closed her laptop and went upstairs to read.
Lots of Charlie news. I would have updated sooner, but my monitor decided to go on the blink. We got a new one from New Egg...can't recommend them higher. We ordered it on Sunday and it got here *today*. It's purty, too. I upgraded from my (wonderful) 19" monitor to a 22" widescreen. My geek side is giddy.
Charlie is going to be transported to Johns Hopkins hospital this week. She needs surgery to correct Pyriform Aperture Stenosis. We thought she had too much flesh in her nose, but it turns out that's *bone*. This is a congenital defect, and it could have had other things with it like brain deformation. She doesn't have that, thank ghods. She does have one large front tooth rather than two, but we can deal with that(especially since, even if she teethes as early as Sam, she's months away from that), and who knows, maybe she'll have two adult front teeth. As Dr. Clawson said, if something else had to come along, this was the one to hope for. Pyriform Aperture Stenosis is rare, which is why it took them so long to figure it out.
The doctors at Winchester were/are *amazing* advocates. I can't praise them highly enough. They knew something wasn't right, and just kept working on the problem till they found the answer, *then* they kept working till they found the right people to fix it. Yes, I know that's what doctors are supposed to do. And I'm damn glad that these doctors did it.
Johns Hopkins has both a pediatric ENT(ear, nose and throat) doctor and a pediatric anesthesiologist, and the surgery is considered by the doctors to be low-risk.
No, I'm not really this calm. I can't even call my mom to talk about it, 'cause I cry whenever I *think* about Charlie in surgery, let alone talk about it. Thank ghods for writing and computers and all that stuff.
But, this really is wonderful, no matter how terrible it seems. They found the problem and it has a solution. Though she probably won't be coming home till February, when she does, she'll be *home* and she'll be eating by mouth. Which also means that every drop she consumes won't have to be measured, so we can work on breastfeeding without the pump. I'm still going to try to get my supply up and so on, but if I can just *Feed* her, it'll be so much easier. We'll see what happens.
Lots of Charlie news. I would have updated sooner, but my monitor decided to go on the blink. We got a new one from New Egg...can't recommend them higher. We ordered it on Sunday and it got here *today*. It's purty, too. I upgraded from my (wonderful) 19" monitor to a 22" widescreen. My geek side is giddy.
Charlie is going to be transported to Johns Hopkins hospital this week. She needs surgery to correct Pyriform Aperture Stenosis. We thought she had too much flesh in her nose, but it turns out that's *bone*. This is a congenital defect, and it could have had other things with it like brain deformation. She doesn't have that, thank ghods. She does have one large front tooth rather than two, but we can deal with that(especially since, even if she teethes as early as Sam, she's months away from that), and who knows, maybe she'll have two adult front teeth. As Dr. Clawson said, if something else had to come along, this was the one to hope for. Pyriform Aperture Stenosis is rare, which is why it took them so long to figure it out.
The doctors at Winchester were/are *amazing* advocates. I can't praise them highly enough. They knew something wasn't right, and just kept working on the problem till they found the answer, *then* they kept working till they found the right people to fix it. Yes, I know that's what doctors are supposed to do. And I'm damn glad that these doctors did it.
Johns Hopkins has both a pediatric ENT(ear, nose and throat) doctor and a pediatric anesthesiologist, and the surgery is considered by the doctors to be low-risk.
No, I'm not really this calm. I can't even call my mom to talk about it, 'cause I cry whenever I *think* about Charlie in surgery, let alone talk about it. Thank ghods for writing and computers and all that stuff.
But, this really is wonderful, no matter how terrible it seems. They found the problem and it has a solution. Though she probably won't be coming home till February, when she does, she'll be *home* and she'll be eating by mouth. Which also means that every drop she consumes won't have to be measured, so we can work on breastfeeding without the pump. I'm still going to try to get my supply up and so on, but if I can just *Feed* her, it'll be so much easier. We'll see what happens.