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Feb. 5th, 2009 11:07 pmWe have progress. {Totally c&ping from a letter to my mom.}
Jeff had to go into the office for the rest of the week, so when he went into see Charlie Tuesday night, he asked that her doctor (any doctor, really) call him during the day tomorrow. It turned out that one of the doctors was there, so they had a chat.
The doc set up a sleep study for her. I'm not sure what they'll be studying exactly, as her heart, breathing, pulse-ox levels and something else are always monitored, whether she's asleep or awake. (She has three leads and the pulse-ox monitor on a foot (they change feet once a day or so), and I'm not sure what the third lead is for) But, the doctor seems to know what data he wants, so I'm good with that. Apparently, the study will tell them whether surgery is the right way to go or not. He told Jeff that doing the surgery too early could cause the problem to come back. I'm not exactly sure what that means, either. 'Cause I didn't know cartilage could grow back. But, that might not have been what he meant.
Anyway, according to Jeff, the sleep study is going to determine if she gets surgery or if they just give her to us. So I guess my yelling at the universe got results (yeah, that's what did it...).
(back to original content) The sleep study was last night, which is why we didn't visit. I hate not visiting, but this was for a good cause. And, apparently she passed. The nurse she has tonight said the results should be in early tomorrow. Lots of finger-crossing going on here.
In related news, Jane Yolen wrote me back!
Oh. Yeah. I should probably start at the beginning. Well, on Tuesday night, I was having a heck of a time getting Charlie to sleep...I'd tried all the tricks, sung all the songs and even put her in the baby swing for a while (she was *so* uninterested that it was impressive). She'd sleep happily on my shoulder, but it was about one-thirty in the morning and I had to get Jeff and Sammy back to the room so they could sleep. And when I put the Charlie down, she'd wake right back up.
I remembered that they had small tape players in each crib. They play stories for the babies, and the one in Charlie's player was Owl Moon, by Jane Yolen. I started the story playing, and blew on the mobile (it's the old-fashioned kind without a motor). She's more interested in the mobile now, though I'm not sure it'll ever hold her attention like the one with the rotating animals.
Once the reading started, she was very interested and settled right down. I don't know how long it took her to sleep (though, she was so sleepy that I wouldn't be surprised if she was out by the time I got back to the waiting room), but I was comforted by being able to leave her with a favorite story by a favorite author.
When we got back to the room, I looked up Ms. Yolen's site and sent her mail, telling her about what happened and thanking her for her part in it.
She wrote back the next day, saying that she was holding Charlie and I in the light. "Or the Moonlight". Which was just beyond cool.
I think I'll print it out and put it in Charlie's baby book.
Note to self. Buy baby book.
Jeff had to go into the office for the rest of the week, so when he went into see Charlie Tuesday night, he asked that her doctor (any doctor, really) call him during the day tomorrow. It turned out that one of the doctors was there, so they had a chat.
The doc set up a sleep study for her. I'm not sure what they'll be studying exactly, as her heart, breathing, pulse-ox levels and something else are always monitored, whether she's asleep or awake. (She has three leads and the pulse-ox monitor on a foot (they change feet once a day or so), and I'm not sure what the third lead is for) But, the doctor seems to know what data he wants, so I'm good with that. Apparently, the study will tell them whether surgery is the right way to go or not. He told Jeff that doing the surgery too early could cause the problem to come back. I'm not exactly sure what that means, either. 'Cause I didn't know cartilage could grow back. But, that might not have been what he meant.
Anyway, according to Jeff, the sleep study is going to determine if she gets surgery or if they just give her to us. So I guess my yelling at the universe got results (yeah, that's what did it...).
(back to original content) The sleep study was last night, which is why we didn't visit. I hate not visiting, but this was for a good cause. And, apparently she passed. The nurse she has tonight said the results should be in early tomorrow. Lots of finger-crossing going on here.
In related news, Jane Yolen wrote me back!
Oh. Yeah. I should probably start at the beginning. Well, on Tuesday night, I was having a heck of a time getting Charlie to sleep...I'd tried all the tricks, sung all the songs and even put her in the baby swing for a while (she was *so* uninterested that it was impressive). She'd sleep happily on my shoulder, but it was about one-thirty in the morning and I had to get Jeff and Sammy back to the room so they could sleep. And when I put the Charlie down, she'd wake right back up.
I remembered that they had small tape players in each crib. They play stories for the babies, and the one in Charlie's player was Owl Moon, by Jane Yolen. I started the story playing, and blew on the mobile (it's the old-fashioned kind without a motor). She's more interested in the mobile now, though I'm not sure it'll ever hold her attention like the one with the rotating animals.
Once the reading started, she was very interested and settled right down. I don't know how long it took her to sleep (though, she was so sleepy that I wouldn't be surprised if she was out by the time I got back to the waiting room), but I was comforted by being able to leave her with a favorite story by a favorite author.
When we got back to the room, I looked up Ms. Yolen's site and sent her mail, telling her about what happened and thanking her for her part in it.
She wrote back the next day, saying that she was holding Charlie and I in the light. "Or the Moonlight". Which was just beyond cool.
I think I'll print it out and put it in Charlie's baby book.
Note to self. Buy baby book.
