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Well, that was cool. I handed Sam a copy of Harry Potter & The Sorcerer's Stone. She yelped with glee and then closed her laptop and went upstairs to read.

Lots of Charlie news. I would have updated sooner, but my monitor decided to go on the blink. We got a new one from New Egg...can't recommend them higher. We ordered it on Sunday and it got here *today*. It's purty, too. I upgraded from my (wonderful) 19" monitor to a 22" widescreen. My geek side is giddy.

Charlie is going to be transported to Johns Hopkins hospital this week. She needs surgery to correct Pyriform Aperture Stenosis. We thought she had too much flesh in her nose, but it turns out that's *bone*. This is a congenital defect, and it could have had other things with it like brain deformation. She doesn't have that, thank ghods. She does have one large front tooth rather than two, but we can deal with that(especially since, even if she teethes as early as Sam, she's months away from that), and who knows, maybe she'll have two adult front teeth. As Dr. Clawson said, if something else had to come along, this was the one to hope for. Pyriform Aperture Stenosis is rare, which is why it took them so long to figure it out.

The doctors at Winchester were/are *amazing* advocates. I can't praise them highly enough. They knew something wasn't right, and just kept working on the problem till they found the answer, *then* they kept working till they found the right people to fix it. Yes, I know that's what doctors are supposed to do. And I'm damn glad that these doctors did it.

Johns Hopkins has both a pediatric ENT(ear, nose and throat) doctor and a pediatric anesthesiologist, and the surgery is considered by the doctors to be low-risk.

No, I'm not really this calm. I can't even call my mom to talk about it, 'cause I cry whenever I *think* about Charlie in surgery, let alone talk about it. Thank ghods for writing and computers and all that stuff.

But, this really is wonderful, no matter how terrible it seems. They found the problem and it has a solution. Though she probably won't be coming home till February, when she does, she'll be *home* and she'll be eating by mouth. Which also means that every drop she consumes won't have to be measured, so we can work on breastfeeding without the pump. I'm still going to try to get my supply up and so on, but if I can just *Feed* her, it'll be so much easier. We'll see what happens.

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It's not great news, but it's better news that she will be coming home soonish. It's fairly minor, so you and she will have this to get taken care of, and then it will be the normal feed me, diaper me, play with me, of babies :)

While you are in the area, come see us. Charlie is going to be just fine. I have no doubt about that.

You have both my sympathy and my hope. I watched my baby undergo surgery last summer, and it was terrifying, but it made the problem Go Away and it hasn't come back once since. May Charlie's be as uneventful and as successful.

What they said. It's good to KNOW. It's even better that it's MINOR.
I love you all so much. *hugs*

P.S. From my googling, I see that the pituitary can be affected too, have they checked?

Yeah. The doctors ruled out any other problems related to it other than the possibility of a single front tooth.

Is good. Keeping an eye out for the endocrine stuff will be a good idea, just cause... but that's forever away. And 'megaincisor' kinda has a cool ring to it. She's a vorpal bunny!

My youngest son had a large baby tooth but when it came out two permanent teeth took it's place.
Best wishes to Charlie.

February isn't that far away and then it'll be all good. I'm soo soo happy they've figured out what needs fixing. And this soon, too.

Keep us updated on the surgery date. Candles, prayers and good energy from all over the country will help both of you, I think.

Hugs.

Congratulations on having a name. Monsters are always scarier when you don't know what they are. *hugs*

Thank goodness. I am glad that this is starting to work out for you and your family.

I have been thinking good thoughts for her and will continue to do so.

It's a relief to know, and you (and your family) have all of our support, good thoughts, and love. ♥

At least you know what it is, and there's a way to fix it. Good thoughts and prayers for easy surgery, quick recovery and Charlie home for good!

According to your icon, I am a glutton. Bon appetit!

That's good to hear -- keep us updated on how Charlie does! *hug*

Wow! Best wishes.

(How does one put an oxygen mask on a child getting nasal surgery?)

Aww, Charlie is such a sweetheart!! I'm so glad you have good doctors and that you finally know what's going on and have a solution.

*hugs and more hugs* to all of you.

And yay for Sam for wanting to go read!!! :)

They found the problem and it has a solution.

Yay for competent people. *hugs* offered to help you all get through it.

Thank God. They found it, they'll fix it and she'll be home in your arms in a jiffy!! XOXOXOXOXO

Now that's a surprise, but I'm so glad it was figured out!

Much love to you and yours.

Are you going to be in Baltimore too, or just Charlie? Either way, please let me know if there is anything I can do to help you guys out. I'm only a 10-minute drive from Hopkins, and my husband is working in the pediatric hospital for the rest of the month.

Wow, for someone who says she's not calm, you certainly have/had me fooled...Charlie, you...your whole family...are in my thoughts and prayers. {{HUG}}

Knowing is always better than not knowing. That's great about the doctors! I don't know what it is that makes us surprised when doctors care but it's nice to hear stories that dismiss that belief. You and Charlie are in my thoughts.

phew, that you know and it is resolvable. Love to you and yours though this tough scary time- and to your boobs! keep up the good work! XOXO

I'm glad this is something they can fix. My prayers are with you and your family.

Thank goodness she dodged the brain bullet! I know there's no way you aren't going to be anything other than terrified until she's home safe, but everyone here at my end is pulling for her, and you!

I'm glad to hear she'll get to be home with you soon. XOXOXOX

Problems with solutions are good ones to have!

I'm sorry you guys are still separated but am glad that she won't be away much longer.

I think about you guys a lot! Tons of healthy, healing vibes!

*hugs*

Charlie will be fine and will come home.

Wonderful news!

We received the picture yesterday. Thank you. She's such a beautiful little thing. :D

many *hugs*

I light candles for both of you - Charlie that she will be well and You for emotional support. If that's JH in Baltimore, let me know and I'll drive up to keep you company while you're here.

Aww, poor baby! And poor Mom and Dad and sister! I can only imagine how worried sick you must be over the prospect of surgery :(. But it sounds like a "pretty good" problem for her to have, if she had to have something weird going on. I hope the time flies, the surgery and recovery are smooth, and that all will be super well once she gets home.

Just the best to all of you.

*hugs*
You are one strong mama and that is one amazing child you have.

Late to the party but I'm in Baltimore and can offer help, tea or whatever. I'm home days again so could be helpful - let me know.